In the Heart of the Journey, We Find Each Other — Bringing CFC Families Together to Share Strength, Stories, and Support.
Attend an upcoming event!
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San Antonio, Texas - May 30-31, 2025
We’re thrilled to invite CFC families to a special weekend of connection, fun, and community in San Antonio, TX!
📍 Where: Morgan’s Wonderland, 5223 David Edwards Dr, San Antonio, TX 78233
Hotel: Drury Inn & Suites San Antonio Northeast, 4900 Crestwind Dr., San Antonio, TX 78239
For more hotel information, call: (210) 657-1107
$126 + tax per night
**This rate is ONLY guaranteed until May 7, 2025. Please make reservations by this date to ensure the group rate is honored.Rooms are reserved in the CFC International hotel block for the nights of Friday, May 30 and Saturday, May 31.
Click here to make your hotel reservation
🗓️ When: May 30 – 31
🎡 What’s Happening:
Group visit to Morgan’s Wonderland on Saturday, May 31
The Morgan’s Wonderland visit is FREE for families to attend!CFC Family Pizza Party at the Drury Inn & Suites (time TBD)
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Toronto, Ontario - June 7, 2025
CFC International is excited to host a meetup in Canada! All CFC families are invited to meet in Toronto for an afternoon of building connections, finding support and enjoying some delicious pizza!
📍 Where: Holiday Inn Express & Suites Toronto Airport South
25 International Blvd. Toronto, M9W 6H3$199 CAD + tax per night for single room
$209 CAD + tax per night for double/triple room
$219 CAD + tax per night for quad roomRooms are reserved in the CFC International hotel block for the nights of Friday, June 6 and Saturday, June 7.
Click here to make your hotel reservation
🗓️ When: Saturday, June 7
🎡 What’s Happening:
Family Pizza Party
12:00-3:00 p.m. at the hotel -
Atlanta, Georgia - June 27-28, 2025
Join us at the NORD Living Rare, Living Stronger event, and stick around for a CFC family meetup!
📍 Where: NORD Event Location: Georgia Aquarium, 357 Luckie Street NW, Atlanta, GA 30313Hotel: Hilton Garden Inn, 97 10th Street NW, Atlanta, Georgia 30309 USA - tentative location
$169 + tax per night - tentative rate
🗓️ When: June 27 & 28
🎡 What’s Happening:
Friday, June 27
8:00 a.m. to 4:00 p.m.
NORD Living Rare Living Stronger Event
This event is FREE for families!Click here for more information and to register for the Living Rare, Living Stronger event
Saturday, June 28
CFC Family Breakfast at the Hilton Garden Inn, hosted by CFC International -
Rasopathies Network Scientific Symposium
📍 Where: Hyatt Regency Grand Cypress
1 Grand Cypress Blvd, Orlando, FL 32836$199-219 + tax per night, depending on the occupancy and type of room selected
For more hotel information, call: (407) 239-1234
Click here to make your hotel reservation🗓️ When: July 25-27, 2025
🎡 What’s Happening:
Click here for the conference agenda
CFC family gathering hosted by CFC International on Sunday, July 27
(time TBD).More information about a CFC family gathering at the symposium coming soon!
Highlights from Previous CFC Meetups and Events:
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2024 Family Medical Conference - Orlando, Florida
Living as a family impacted by CFC syndrome can often feel isolating, regardless of your location. This conference provided a unique experience where families could discover community, support, and friendship. Attending the conference allowed for fellowship and opportunities to engage with other families and medical professionals.
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Cincinnati Children's Hospital CFC Clinic & Family Meetup
The CFC syndrome Family Clinic at Cincinnati Children's Hospital's Rasopathy Clinic took place on March 20, 2025. We welcomed 20 families for two days of comprehensive clinic care from neurology and cardiology to gastroenterology and genetics. Following the clinic, families joined one another at the hotel for a pizza party!