LOCAL EVENTS:
May 30-June 1, 2025:
CFC Family Meetup – TEXAS Edition!
We’re thrilled to invite CFC families to a special weekend of connection, fun, and community in San Antonio, TX!
Where: Drury Inn & Suites San Antonio Northeast ($126 + tax per night)
When: May 30 – June 1
What’s Happening:
Group visit to Morgan’s Wonderland on Saturday, May 31
Pizza Party (time/location TBD)
Time to connect with other families who truly get it
REGISTER HERE FOR THE TEXAS MEETUP
June 6-8, 2025:
CFC CANADA Family Meetup – TORONTO
Dates: June 6–8
Family Meetup Day: Saturday, June 7
Location: Holiday Inn Express near Toronto Pearson International Airport
Rates:
• $199 CAD/night – single or double occupancy
• $209 CAD/night – triple or quadruple occupancy
The hotel offers a 24/7 airport shuttle, indoor pool, and complimentary breakfast.
We can’t wait to bring our Canadian CFC community together in person!
REGISTER HERE FOR THE CANADA MEETUP
June 27, 2025:
Living Rare, LIving Stronger
NORD® Living Rare, Living Stronger® in Georgia is a one-day event to educate and support patients, caregivers, and their families with the focus in reducing or eliminating their burdens and challenges. LRLS will strive to address the need for candid dialogue around difficult topics, tools for self-advocacy, and connection to much-needed resources.
Join us for the Living Rare, Living Stronger event, and a special CFC syndrome gathering in Atlanta!
Zoo Atlanta 800 Cherokee Ave SE, Atlanta, GA, United States
More details to come. Visit NORD’s website for updates.
REGISTration not yet available
Email info@cfcsyndrome.org for more information
JuLy 25-27, 2025:
9th International Rasopathies Symposium
Collectively, RASopathies comprise one of the largest groups of congenital disorders worldwide estimated to affect ~1:2000 individuals. RASopathies share similar features caused by aberrant activation of signals within and between cells. The proposed symposium will offer the opportunity for international researchers, doctors, advocates, and families with RASopathies to learn from each other about the genetics and organ systems affected by these conditions.
More information can be found on the Rasopathies Network website.
