WE ARE HERE FOR YOU.
Our Family Support Network is made up of committed parent volunteers who represent CFC International. They serve as liaisons between the organization and families in their respective regions around the world, connecting families, hosting events and supporting YOU! CLICK HERE to find out more about the Family Support Network and to connect with families in your area.
Our Family Medical Conferences are held biennially. These conferences provide a fantastic opportunity for families, researchers, and medical professionals to learn about the latest advancements in CFC syndrome. Additionally, families can connect with each other through a diverse agenda packed with various social events. CLICK HERE to learn more about the Family Medical Conferences.
CLICK HERE for a list of healthcare providers who have experience working with children with RASopathies. If you are a doctor or work in a CFC or RASopathy clinic and would like to be added to this list, please contact us at: info@cfcsyndrome.org.
CFC International offers several support sessions each month, along with private online forums for parents. CLICK HERE to explore the different opportunities available for CFC families through our organization.
All members registered with CFC International through our Contact Registry receive regular updates through newsletters, emails and various communication methods. Join the CFC International Contact Registry to stay informed about our CFC community!
CFC International continually updates our Family Resources Page to support our CFC families. Please visit this page for valuable information and resources for your family. If you have resources to suggest for inclusion to this comprehensive list, please email us at info@cfcsyndrome.org.
A Strengthen your family connections by joining other CFC families at an event. Support our mission to enhance the lives of those affected by CFC syndrome by participating in a fundraising or awareness event, or consider hosting your own event or fundraiser! Check out our Upcoming Events page to see what is scheduled and find out more.