Family Resources
We are always looking for new resources to share with our families. If you have a resource need you’d like us to provide on our website, please email info@cfcsyndrome.org.
Thank you for visiting.
HEALTHCARE
Behavior
Seizures
Seizure Hospital Discharge Action Planning
STATE BY STATE RESOURCES (USA)
LIFE Transitions
Self-Guided Educational Transitions Course (FREE)
Educational and Life Transitions Workshop: https://advocacyuniversity.teachable.com/p/education-transition
Childhood to Adult Transition Guide
Advanced and Caregiver End-of-Life Planning
PALLIATIVE CARE
What is palliative care? One CFC mom’s journey and perspective.
Sibling support
Sibling Resources - Sibling Support Leadership Network
FINANCIAL ASSISTANCE
https://www.cfcsyndrome.org/s/StatebyState-IDD-tsgy.pdf