FAMILY SUPPORT NETWORK
Regional Family Coordinators
Coordinators are parents and CFC family members who serve as representatives in the region where they live. They act as a liaison between our families and CFC International. They are also a point of contact for families in their state or region for general questions, guidance and support.
Our parent volunteers in the Family Support Network Program are excited to share their experiences with CFC syndrome and to listen to yours as well! They are knowledgeable about CFC International’s services and resources, allowing them to provide you with valuable information. CFC International can also assist in connecting you with a family in your area. For more information, please email info@cfcsyndrome.org.
If you do not have a liaison in your state or region, you are invited to contact Ashley at agenelin@cfcsyndrome.org, and she will assist you in getting connected with local families.
Connect with your local Family Support Network and host a Social & Awareness Event!
MEET OUR FAMILY Regional Liaisons
If you do not see your Country, Region, or State represented by a Liaison and would like to
volunteer your time to work with families in your area, contact us HERE!
australia
Brooke Troy
australia@cfcsyndrome.org
Brazil
CANADA
Beverly McNeil
canada@cfcsyndrome.org
france
germany
ireland
Sinead Desmond
ireland@cfcsyndrome.org
japan
New zealand
Claire Peters
new-zealand@cfcsyndrome.org
Pakistan & saudi arabia
Sabina Iftikar
pakistan@cfcsyndrome.org
united kingdom
Charlotte Doody (Western Region)
united-kingdom@cfcsyndrome.org
United states
Alabama
Brandy Childress
alabama@cfcsyndrome.org
Alaska
Arizona
Marina Bilgin
arizona@cfcsyndrome.org
ARkansas
California
Christine Hutchinson
california@cfcsyndrome.org
Colorado
Connecticut
Nikolas Karloutsos
connecticut@cfcsyndrome.org
Delaware (OPEN: contact connecticut)
District of Columbia
Florida
Tracy Murphy
florida@cfcsyndrome.org
Georgia
Alexis Nash (CFC International Board Member)
georgia@cfcsyndrome.org
Hawaii
Idaho
Christine Venning
idaho@cfcsyndrome.org
Illinois
Janice Burroughs
illinois@cfcsyndrome.org
Indiana
Iowa
Becky Carlson
iowa@cfcsyndrome.org
Kansas
Kristen Wild
kansas@cfcsyndrome.org
Kentucky
Louisiana
Libby Airhart
lairhart@cfcsyndrome.org
Maine
Maryland
Christina Malinowski
maryland@cfcsyndrome.org
Massachusetts
Darlene Walker
massachusetts@cfcsyndrome.org
Michigan
Minnesota
Ashley Genelin
minnesota@cfcsyndrome.org
Mississippi
Missouri
Crystal Gueyear
missouri@cfcsyndrome.org
Montana
Nebraska
Jennifer Huber
nebraska@cfcsyndrome.org
Nevada
New Hampshire
April Rue
newhampshire@cfcsyndrome.org
New Jersey
Lara Stanwise
new-jersey@cfcsyndrome.org
New Mexico
Maria Ankeny
new-mexico@cfcsyndrome.org
New York
North Carolina
Myra Cliff
north-carolina@cfcsyndrome.org
North Dakota
Cheryl Murch
north-dakota@cfcsyndrome.org
Ohio
Megan Warner
ohio@cfcsyndrome.org
Oklahoma
Shelly Greenhaw
oklahoma@cfcsyndrome.org
Oregon
Patrice Qualman
oregon@cfcsyndrome.org
Pennsylvania
Cara Borian
pennsylvania@cfcsyndrome.org
Rhode Island
South Carolina
South Dakota
Roxanne Heiser
south-dakota@cfcsyndrome.org
Tennessee
TexAS
Holly Cheesebourgh
Brandy Clark
texas@cfcsyndrome.org
Utah
Kyle and Jennifer Stowell
utah@cfcsyndrome.org
Vermont
Virginia
Rebecca Goldbach
Janel Sperry
Vidya Ramabadran
Theresa Milner
virginia@cfcsyndrome.org
Washington
Christine Venning
Christian Navarro
washington@cfcsyndrome.org
West Virginia
Hope Anderson
west-virginia@cfcsyndrome.org
Wisconsin
Megan Statz
wisconsin@cfcsyndrome.org