Our Family Medical Conferences occur every two years. These conferences offer a wonderful chance for families to come together, allowing researchers to share the latest advancements and discoveries related to the syndrome. Medical professionals also present information on diagnosis, treatment, and what to anticipate when living with or caring for someone affected by CFC syndrome. Furthermore, families can connect with one another through a diverse schedule filled with various social activities.

Living as a family impacted by CFC syndrome can often feel isolating, regardless of your location. The conferences provide a unique experience where families can discover community, support, and friendship. Attending a conference allows for fellowship and opportunities to engage with other families and medical professionals. There are various opportunities tailored for individuals with CFC syndrome, siblings, parents, and caregivers to help foster those essential connections that we all need.