meet cfc chAMPION:
REMINGTON
Age 9
Meet Remington, a determined and joyful 9-year-old who loves spending time with his Daddy, his cell phone or iPad, and taking truck rides. He also enjoys school and his favorite characters—Grover, Mickey, and Bluey!
One of Remington’s biggest accomplishments has been learning to walk—something that once seemed uncertain. He started standing with support at just one year old, then zoomed around the house in an infant walker. At three years old, he began crawling, and after years of determination, he finally took his first independent steps at school at age seven—keeping it a secret until his parents found out at a parent-teacher conference!
Though he’s still working on gaining confidence and navigating uneven terrain, he is officially a walker—a milestone that showcases his incredible perseverance and strength!
The best things about being part of the cfc international community…
Being part of the CFC community means having a built-in family—a group of people who truly understand the journey and are always there to support one another. Whether it’s day or night, Remington’s parents know they can call another CFC mom, and she’ll not only answer but dive into research, offer guidance, and help problem-solve. Attending the CFC International Family Medical Conference was an especially powerful experience, filled with connections and reassurance. Seeing older individuals with CFC, like a woman named Rachel, was particularly meaningful. The first conference can feel overwhelming, as families witness the wide range of abilities and mobility levels within the community. In the early years, there is so much uncertainty, but meeting older individuals thriving in adulthood offers hope and possibility—a reminder that CFC children, like Remington, can grow up to live happy, fulfilling lives with the love and support of this incredible community.
One of Remington’s parents’ favorite stories perfectly captures just how big his fan club is in their town! No matter where they go, it seems like someone always greets him with a cheerful “Oh hi, Remmy!” But the moment that truly showed just how loved he is happened on a random Saturday when they followed signs to a garage sale deep in the backcountry of their town. As they arrived, hand in hand with Remmy, a woman suddenly yelled “Remmy!!!”, ran up, scooped him up, and took off with him—excitedly telling someone, “This is the kid I was telling you about!” His parents were stunned, with his mom turning to his dad and admitting, “I have no idea who that woman is…” It turned out to be his former speech therapist from developmental preschool, overjoyed to see him again. Remington’s impact on those around him is undeniable, and his bright spirit leaves a lasting impression wherever he goes!
