Family SUPPORT NETWORK
Parent Volunteers in our growing Family Supportt Network Program are eager to share with you their experiences with CFC syndrome and to listen to your experiences too! They are familiar with CFC International’s services and resources, which enables them to share a wealth of information with you. Just take a moment to connect with your regional coordinator and committee, and say hello! They are always happy to hear from fellow parents and families of a child with CFC syndrome. CFC International can also work to connect you to a family in your area. Just email info@cfcsyndrome.org.
MEET OUR FAMILY AMBASSADORS & Liaisons
If you do not see your Country, Region, or State (in US) represented by a Liaison and would like to volunteer your time to work with families in your area, contact us HERE!
australia
Brooke Troy
australia@cfcsyndrome.org
Brazil (Open)
CANADA
Beverly McNeil
canada@cfcsyndrome.org
france (open)
germany (open)
ireland
Sinead Desmond
ireland@cfcsyndrome.org
japan (open)
New zealand
Claire Peters
new-zealand@cfcsyndrome.org
Pakistan &saudi arabia
Sabina Iftikar
pakistan@cfcsyndrome.org
united kingdom
Samantha Weston (Eastern Region)
Charlotte Doody (Western Region)
united-kingdom@cfcsyndrome.org
United states
Alabama
Brandy Childress
Vidya Ramabadra
alabama@cfcsyndrome.org
Alaska (OPEN: contact washington)
Arizona
Marina Bilgin (Ambassador)
arizona@cfcsyndrome.org
ARkansas (open: contact texas)
California
Christine Hutchinson
california@cfcsyndrome.org
Colorado
Beth Chapman (Ambassador)
colorado@cfcsyndrome.org
Connecticut
Nikolas Karloutsos (Northeastern US Ambassador)
connecticut@cfcsyndrome.org
Delaware (OPEN: contact connecticut)
District of Columbia
Theresa Milner
washington-dc@cfcsyndrome.org
Florida
Tracy Murphy (Southeast US Ambassador)
florida@cfcsyndrome.org
Georgia
Alexis Nash (CFC International Board Member)
georgia@cfcsyndrome.org
Hawaii (OPEN - CONTACT california)
Idaho
Christine Venning (Pacific Northwest US Ambassador)
idaho@cfcsyndrome.org
Illinois
Janice Burroughs
illinois@cfcsyndrome.org
Indiana (OPEN: contact iowa)
Iowa
Becky Carlson
iowa@cfcsyndrome.org
Kansas
Kristen Wild
kansas@cfcsyndrome.org
Kentucky (open: contact tennessee)
Louisiana
Libby Airhart
lairhart@cfcsyndrome.org
Maine (open: contact connecticut)
Maryland
Christina Malinowski (Aid-Atlantic Ambassador)
maryland@cfcsyndrome.org
Massachusetts
Darlene Walker
massachusetts@cfcsyndrome.org
Michigan (OPEN: Contact minnnesota)
Minnesota
Ashley Genelin (CHAIR, FAMILY AMBASSADORS)
Amanda Krejce
minnesota@cfcsyndrome.org
Mississippi (OPEN: COntact louisiana)
Missouri
Crystal Gueyear
missouri@cfcsyndrome.org
Montana (open: contact washington)
Nebraska
Jennifer Huber
nebraska@cfcsyndrome.org
Nevada (open: contact arizona)
New Hampshire
April Rue
newhampshire@cfcsyndrome.org
New Jersey
Lara Stanwise
new-jersey@cfcsyndrome.org
New Mexico
Maria Ankeny
new-mexico@cfcsyndrome.org
New York (OPEN: CONTACT CONNECTICUT)
North Carolina
Myra Cliff
north-carolina@cfcsyndrome.org
North Dakota
Cheryl Murch
north-dakota@cfcsyndrome.org
Ohio
Megan Warner
ohio@cfcsyndrome.org
Oklahoma
Shelly Greenhaw
oklahoma@cfcsyndrome.org
Oregon
Patrice Qualman (Ambassador)
oregon@cfcsyndrome.org
Pennsylvania
Cara Borian
pennsylvania@cfcsyndrome.org
Rhode Island (open: contact connecticut)
South Carolina
Cathy Wilson
south-carolina@cfcsyndrome.org
South Dakota
Roxanne heiser
south-dakota@cfcsyndrome.org
Tennessee
Sara Greene
tennessee@cfcsyndrome.org
TexAS
Holly Cheesebourgh (Southern US Ambassador)
Brandy Clark
texas@cfcsyndrome.org
Utah
Kyle and Jennifer Stowell
utah@cfcsyndrome.org
Vermont (open: contact connecticut)
Virginia
Rebecca Goldbach (Ambassador)
Janel Sperry
virginia@cfcsyndrome.org
Washington
Sarah Worthington
washington@cfcsyndrome.org
West Virginia
Hope Anderson
west-virginia@cfcsyndrome.org
Wisconsin
Megan Statz
wisconsin@cfcsyndrome.org