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Membership in CFC International is free. After you register here, you will receive an invitation to join the CFC email listserve, where you can network with other CFC families. CFC International will contact you with further helpful information and answer any questions you may have. Your contact information will never be sold, and will only be shared in the CFC address directory with your permission.

First Name:
Last Name:
Address 1:
Address 2:
City:
State:
Zip:
Country:
Home Phone:
Cell Phone:
Email:
Relationship to affected person:
Name of affected person:
Male or Female:
Date of Birth:
Date of Confirmed Diagnosis:
Mutation:

After registration, you will have an opportunity to sign up for further CFC-related information and research:

  • The CFC Chronicle, CFC International"s newsletter with the latest news, research, and CFC information.
  • CFC International conferences, held every other year. The upcoming conference will be in July 28 - July 30, 2011 in Chicago. Meet other CFC families and attend the medical clinics, with access to knowledgeable doctors and researchers on CFC Syndrome. *
  • The CFC International address directory.

* In order to receive a clinic exam or use professional childcare at our conference, you must complete and send in the CFC Registry, along with a copy of a genetics report, testing result, photos and copies of specialist reports.
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Cardiofaciocutaneous SyndromeCFC International Cardiofaciocutaneous Syndrome
info@cfcsyndrome.org • 183 Brown Rd. • Vestal, NY 13850 • phone: 607-772-9666 • fax: 607-748-0409