Stories of Hope


“Hope is the thing with feathers
That perches in the soul
And sings the tune without the words
And never stops at all.”
-Emily Dickinson


Alec’s Story of Hope

Alec and His Wildlife Adventures Alec Farmer entered this world in Dayton, Ohio on January 22, 1996. He was a large baby, tipping the scales at 10 lbs 9 oz, so a c-section delivery was required. His large size came as a huge surprise as we were told to expect a 7-8 lb baby just a few days earlier. Alec received the complete post delivery exam and did not show any obvious indicators that there was anything wrong. Other than a short stint of col ...
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Caleb’s Story of Hope

Celebrating Caleb It was a little over 19 years ago. Two young kids were excited to be having a kid of their own; their first one. Alice and I walked into the room to get our first ultrasound. We were so excited. We would actually get to see our baby. We would find out if it was a boy or girl. We didn’t care what the gender was, just so long as he or she was healthy. The conversation with the ultrasound technician was light hearted at fir ...
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Kaci’s Story of Hope

Kaci Danielle Smith made her entrance into the world on December 19, 1994 at 6:00 a.m. Weighing 9 pounds 7 ounces, she was the biggest baby in the hospital. Although we didn’t know it then, that would be the last time she was the largest among her peers. Shortly after her birth, she was taken to the neonatal intensive care unit. I remember looking at her and all of her perfection. I couldn’t understand why she was there. The doctors seemed ...
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Lucian’s Story of Hope

Hello from New Zealand My husband and I with our sons Lucian & Arlo live in Dunedin, New Zealand and have had what we now know as a very similar journey to others with CFC. For three and a half years we had no definitive diagnosis, in fact we got to the point where we just lived our life and stopped thinking about it, if we weren’t put in a box of a diagnosis then we could reach for the sky. It was a surprise when we finally received ...
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Marcus’ Story of Hope

I am tremendously proud of my children. They are three rare, unique gems and I love their exceptional, distinct qualities. However, my son is the rarest of the three. A genetic mutation gave him a truly beautiful soul and a heart which is incapable of malice. This is his greatest gift to the world. He may never truly understand what he has given to me but he has already taught me far more than I will ever teach him. Marcus inspires those aroun ...
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