Gina holds a Master’s Degree in Public Administration with an emphasis on Non-profit Sector Management from California State University-Northridge and a BA in Sociology from Siena College. She brings proven leadership and management skills, as well as experience working in the rare disease field to the position of Executive Director.
Gina’s most recent experience includes working at the Children’s Cardiomyopathy Foundation as the Director of Family Outreach & Support, overseeing all services for children diagnosed with cardiomyopathy and their families; as well as outreach and relationship building among the medical community. She has spent her career in the non-profit field and has extensive experience working with youth and families, providing counseling and support, developing programs and educational resources, training, managing volunteer programs, creating awareness initiatives and building collaborative partnerships. She is honored to join the CFC International team and looks forward to advancing its mission and continuing the vital work of the organization.
Gina lives in the Albany, New York area with her husband and two young children.
Jenny holds a Masters of Public Health from New York Medical College in Environmental Science. She works in the Department of Global Environmental Affairs and Safety at The Estee Lauder Companies, one of the world’s leading manufacturers and marketers of prestige beauty products with a family of more than 30 brands. As the Executive Director of Global Retail EHS, Jenny is responsible for administration and oversight of all environmental, health and safety programs including compliance, wellness, and corporate responsibility in the retail sector.
Jenny lives in Long Island, NY with her husband Darin and daughter Nola Rose who was born with CFC syndrome.
Shelly lives in Edmond, OK with her husband, Coby, and daughters Kinley and Kamden. Shelly graduated from Oklahoma Baptist University with a bachelor’s degree in Healthcare Administration. She works as a Capital Account Executive for Medtronic Patient Monitoring and Recovery, where she partners with healthcare organizations and hospitals in the implementation of monitoring and device optimization, with a focus on oxygenation, ventilation and perfusion. Shelly serves on Medtronic Patient Monitoring’s Commercial Leadership Council and is a Field Sales Trainer.
As a mother of a teenager affected by CFC Syndrome, Shelly is active within the CFC International community. Shelly also serves on the Board of the Oklahoma Family Network (OFN), her state’s Family-to-Family Health Information Center, where she was previously a supporting parent. Shelly is also a Partners in Policymaking Graduate, anchoring her to advocacy and partnership with elected officials to positively change the way people with disabilities live, work, and are educated.
Cara and her husband, Peter, live in Sinking Spring, PA and have three children, Colleen (16), Kieran (14), and Leah (6-CFC). They have been part of CFC International since 2010 when Leah was diagnosed with a BRAF mutation at 8 months old. They stay busy trying to keep up with the older kids sport’s schedules that include cheerleading, football, basketball and baseball. Luckily, Leah is a huge fan of her brother and sister and loves to tag along.
Cara’s background is in chemical engineering and after leaving the field to stay home and raise their children for almost 15 years, she has recently returned to the workforce. Cara has embarked on a new career and is the marketing manager for a telecommunications company called Agility Communications Group.
A volunteer for CFC International since 2012, Cara sends out the thank you letters for the donations that are received by the organization. In addition, she has also been involved in volunteering for MOMS Club International, a support group for at-home mothers, for over 15 years and currently serves as an Assistant Regional Coordinator. Cara has found CFC International to be a great support in Leah’s CFC journey and is looking forward to giving back by serving as a board member.
Les lives in Roseburg, Oregon with his wife, Jennifer, and daughters Aurora and Gloria. Gloria was born in 2013 and was diagnosed at eight months old with CFC. Les is an advocate for the developmentally disabled community, and his experience growing up with a disabled adopted sister helped prepare him well for life as an advocate at the regional and state level in Oregon. Les is a Human Development Instructor and Advisor for the TRiO program at Umpqua Community College. Les has also worked as a high school teacher, and a football coach at an early college charter school in California.
Les is passionate about informing and supporting families affected by CFC Syndrome, Infantile Spasms/West Syndrome, and the greater developmentally disabled community. Les holds a B.A. in Economics and a Master of Public Administration Degree from California State University, Stanislaus. Les is also a credentialed teacher in both California and Oregon.
Libby Airhart currently lives in Breaux Bridge, Louisiana with husband, Jason, and 3 children; Ryker (9), Jackson (8), and Amelie (3.5). Amelie, born in July of 2013, was diagnosed at 10 months old with CFC syndrome. Amelie also has a metabolic condition diagnosis.
Libby is a graduate of the National Emergency Medical Services academy and is a certified Emergency Medical Technician (EMT), certified in Emergency dispatch, and is CPR certified. After 12 years in the medical profession, she is highly knowledgeable in the medical world. Libby is a huge advocate for the disabled. She is involved in many special needs organizations and has also created her own local Facebook page for special needs families in her area.
Libby is very passionate about CFC syndrome. She has entered Amelie into pageants around the state, basically to get the word out about her syndrome. Libby is willing to help educate as many people as possible about CFC. She stays in close touch with her local state families and cherishes those special times together with them. New to the board, she looks forward to working to the best of her ability to serve our families and the organization.
Tuesdi Dyer lives in St. Petersburg, Florida with her husband Brent, and two sons, Ellis and Emmett. Emmett was diagnosed with CFC Syndrome at 4 months old.
Tuesdi is a Certified Fundraising Executive (CFRE), and has dedicated the last two decades of her career to nonprofit leadership. She is currently the Director of Strategic Solutions at the Nonprofit Leadership Center, where she provides coaching and capacity building to nonprofit leaders. Additionally, Tuesdi is a visiting instructor in the University of Tampa’s Nonprofit Management Graduate Certificate Program. Tuesdi has served on numerous boards of directors for organizations focused on education and child welfare, and was President of the Junior League of St. Petersburg. She holds a B.A. from Texas A&M University.
Jeff and his wife Linda had a daughter, Stephanie, with CFC syndrome. Stephanie passed away in 2011 at age 24. In honor of Stephanie, Jeff and Linda started a scholarship fund. The fund allows families with a financial need to attend the CFC conference.
Jeff is a CPA and recently retired from the accounting firm PricewaterhouseCoopers, where he was a tax partner. Prior to that, he worked for General American Life Insurance Company.
Previously, Jeff has served on several other boards of directors, including DAKOTA (an organization to foster further involvement of dads in the activities of their children with disabilities), the St. Louis Public Schools Foundation, St. Joseph Home for Families, and Ride on St. Louis (therapeutic horsemanship for children with disabilities).
Jeff resides in St. Louis, Missouri, and is looking forward to serving on the CFC International Board.