Mission and Vision

Our Mission

To improve the quality of life through family support, research, and education

Our Vision

Advance understanding and treatment of CFC syndrome.

Our Goals

  • To provide support as needed by people affected by CFC syndrome through outreach, education and information sharing.
  • To ensure that physicians have ready access to the latest information to enable accurate diagnosis and proper symptom treatment.
  • To maintain a registry of CFC individuals.
  • To foster and facilitate research on CFC syndrome including development of appropriate treatments.
  • To maintain a broad base of funds needed to accomplish our mission and goals.
  • To provide sustainability of the organization through continuity and growth.
  • To support a collaborative relationship among the conditions of the RAS pathway.